

Well this is long overdue but I am sure everyone understands. Life is all about Melia and Elle nowadays and actually a bit more about Elle. Never did we think that feeding would be such an issue or shall we say so difficult. Between visiting multiple doctors and occupational therapists visits we have finally realized that our little munchkin has severe reflux. We have managed to keep her feeding tube out for a few days at a time, but she quickly lets us know that she's just not ready to be a big girl yet. It is heart wrenching watching her scream from the pain when the reflux gets the best of her and that is when we know to just snuggle her and let her know we are there. Our last jaunt of a tubeless life was a few days ago and we were 'ordered' to put the tube back in due to her high risk of aspiration(when the food goes into her lungs). Again another major blow for mommy and daddy but time has let us realize that we'd rather have a tube in nose and be at home, than be in the hospital with pneumonia or worse(stopping to breathe). Reflux in a fullterm baby can be serious but is that much worse in a preemie...lucky us. So we may have a tube on our angels face for a while longer, but in the grand scheme of things.....who cares! Elle's last weigh in a few days ago put her a 6lbs 14oz!
Melia & Elle being discharged





